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WELCOME
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| Former MN Twins baseball player, Kent Hrbek and his wife, Jeanie. |
We Are A Local Organization With National Support!
We welcome you to browse through the many topics on our website, but we never want to forget our main focus - people dealing with the stages of ALS.
If you are a person with ALS (PALS) or a caregiver, family member of friend of a person with ALS please go to Patient Services/Local Services to find out how The Minnesota Chapter can help. Please don't hesitate to contact us at any time.
The ALS Association is the only not-for-profit voluntary health organization dedicated solely to the fight against ALS. Read More > |
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NATIONAL NEWS
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Genome Study Identifies
Chromosome 9 Link to ALS
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In an ALS Association-funded study conducted in Finland, researchers found that a major cause of familial ALS was located on chromosome 9p21. Finland is a well suited location for a genome-wide association (GWA) study of ALS because the incidence of the ALS is one of the highest in the world, and the genetic background of the Finnish population is relatively homogenous. Previous GWA studies have failed to identify a single location that is significant and can be replicated in other studies probably because of the heterogeneity of the disease.
“Although GWA study has been a disappointing approach to find new genes linked to sporadic ALS, it is encouraging to see the approach used successfully in a more homogeneous population,” said ALS Association Chief Scientist Dr. Lucie Bruijn, Ph.D.
In the study published in Lancet Neurology, 853 DNA samples were collected from 442 people with ALS and 521 control individuals. Control samples were from a population-based study of elderly Finnish individuals. People known to carry the SOD1 gene were included in the final analysis as positive controls to assess whether this genome-wide association study was able to detect an association signal.
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The ALS Association Minnesota/North Dakota Chapter AgeWell In-Service Video
Click on this video trailer to see a five-minute summary of the Chapter’s in-service on ALS. This video/DVD features the Chapter’s Patient Services staff speaking about the identification, progression, and standards of care for individuals with ALS, and resources available to them through The ALS Association, Minnesota/North Dakota Chapter.
This DVD was developed in collaboration with AgeWell Home Care (Edina, MN) , who generously filmed and edited it for distribution. This 2 hour- long DVD is available to home health care agencies, assisted living and skilled nursing facilities and is to be used for staff training. The first hour of the DVD addresses the disease process and care. The second hour addresses the resources available to individuals with ALS and their families through The ALS Association, Minnesota/North Dakota Chapter. Patient Services staff are available to answer any questions that arise after viewing the DVD.
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| NEWS & EVENTS |
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The 2010 Dinner of Champions, A Gala Event, will be held on Thursday, November 11 at The Northland Inn located in Brooklyn Park. We will be honoring Thomson Reuters for their years of support. Read More>
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The 2011 Black Woods Blizzard Tour is Open for Registration
Registration is now open for the 2011 Black Woods Blizzard Tour. There will be 175 riders, each raising $1,200 to participate in the 3-day snowmobile event in northern Minnesota. Besides raising lots of money for patient services and research, you will find lots of fun, camaraderie and emotion in this event. Read more about the event here.
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 A Day to Remember - Rochester
Join us Thursday, September 30th for A Day to Remember-Rochester. This event will honor those who have died from ALS with music, reflections, readings, and candle lighting. Click here for more information and to RSVP.
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 Larry Sing Memorial ALS Golf Classic
The 16th Annual Larry Sing Memorial ALS Golf Classic took place on Monday, August 23 in Fargo and Moorhead. More than 210 people participated in the event this year and contributed greatly to its success. Read More>
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 FLU SHOT REMINDER:
Influenza (flu) immunizations are highly recommended for people with ALS, their caregivers, and anyone who comes in regular contact with them. Read More>
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Insurance Planning -
Get Help!
There are a number of things to consider upon receiving a diagnosis of ALS. People with ALS and their familes must think about medical care, financial decisions, care giving...not to mention the day to day management of simply living with ALS.
Yet another thing to consider is selecting the best insurance coverage for you. Read More> |
 ALS LENDING LIBRARY
We recently asked Will Spalding, 8 years old, to read and review two of our ALS Children's books - The Fall of Freddie the Leaf: A Story of Life for All Ages and the ALS Activity Book: Helping Children Understand the Puzzle of Amyotrophic Lateral Sclerosis. Click here to read his reviews and check out our ALS Lending Libarary here. |
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PALS Doug McDougall Inspires UND Occupational Therapists
Doug McDougall didn’t hesitate when agreeing to talk to the University of North Dakota Occupational Therapy Class. For two hours he held the student’s attention while he discussed how ALS has affected his life ...Read More>
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TIPS ON INCOME TAX DEDUCTIONS
An itemized deduction is allowed for expenses paid during the tax year for medical care. Read More >
MN Chapter 2009 Annual Report is here! View Report>
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Charities Review Council
 The ALS Association, Minnesota Chapter, is an approved charitable organization by the Charities Review Council. Read More>
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 Be Prepared for Disasters Decrease the impact of a disater. Read More>
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 Meet Our Community Partners! Read how local organizations are supporting The MN Chapter. Read More >
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 The Minnesota Chapter is a cause on Facebook. The ALS Association, Minnesota Chapter is now available as a Cause on Facebook, a social networking website.
Read More > |
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Make a general gift
to our chapter.
Your donation supports
The ALS Association's mission.
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