To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.
About The ALS Association
The ALS Association is the only
organization leading the fight to discover a cure for ALS from all angles
robust research, care,
public policy programs. Our solution is
an integrated approach that will lead us to viable treatments and cure for this
RESEARCH | The
ALS Association is at the forefront of the global research effort funding over
$138 million in research and clinical management projects. To maximize results, The Association channels
our funding, made possible through the generous support of donors, into global
research projects focused on six tightly-related areas:
cells for disease modeling and therapy testing
CARE SERVICES | The
ALS Association helps patients and families cope with the day to day challenges
of living with ALS by providing information, resources, and referrals to many
sources, including a wide variety of community services through our nationwide
Our nationwide network of ALS Association
Certified Centers of Excellence provide state-of-the-art, multi-disciplinary
ALS care and services in a supportive atmosphere with an emphasis on hope and
quality of life. To become certified as one of these centers of excellence, an
ALS clinic must achieve national prominence, meet rigorous clinical care
standards, and pass a comprehensive site inspection.
PUBLIC POLICY | Our
nationwide network plays a integral role in advocating for increased public and
private support of ALS research and patient care. The ALS Association’s public policy efforts
in Washington D.C. have raised the profile of ALS by
working with the White
House, Congress, National
of Health, Centers for Medicare and Medicaid Services, Food and Drug
Administration, Department of Defense, Department of Veterans Affairs, Social
Centers for Disease Control and Prevention.
Amyotrophic Lateral Sclerosis (ALS), also
known as Lou Gehrig’s Disease, is a progressive neurodegenerative disease that
slowly robs a person of the ability to walk, speak, swallow and, eventually
breathe. With no known cause or cure, a person can expect to live typically 2
to 5 years from the time of diagnosis.
ALS has no racial, ethnic or socioeconomic
boundaries and in only 10% of cases there is a family history of ALS. Today,
there are approximately 30,000 people in the US living with ALS and 5,600
people are diagnosed each and every year in the US.