Mom, aka Kathy Begnaud, was diagnosed with ALS in August 2017. Her mind is, and will remain, sharp as a tack (she’ll be the first to remind you!), but the disease is starting to take her ability to speak, swallow, and is showing signs of weakening her extremities. Atypical to most patients, she has bulbar onset of ALS which impacts her speech/mouth/throat before extremities (limb onset). Bulbar onset is typically a more rapid progression of the disease when compared to limb onset patients. She is receiving Radicava treatments through the wonderful team at the University of Minnesota’s Masonic Cancer Center, led by Dr. David Walk. Radicava was recently approved by the FDA as the second treatment option for ALS patients. Clinical studies support its ability to slow the progression of ALS better than its predecessor. So far, the side effects have been manageable. She has an incredible team of doctors and resources available to her all within the U of M clinic.
Mom continues to cherish time with family and friends, reading, writing (check out Caring Bridge!), and traveling. The support has been incredible. THANK YOU FROM THE BEGNAUDS! She is surrounded by love and her strong faith in God has kept her spirits high.
We love you Mom.
And now for the fine print:
On April 21st our team will be participating in the SuperHero 5k/10k Dash, an event designed to raise funds in support of those with ALS throughout our region. The event offers 5k & 10k runs, a 5k walk and a kids dash. We are reaching out to you because we need your help to reach our team fundraising goal. Together, we can support those living with Lou Gehrig's Disease while spreading awareness of the urgency to find treatments that will lead to a cure.
This is a great time to get your family, friends, colleagues and neighbors involved and become SuperHeroes! Please consider the difference that you might be able to make in the lives of people affected by this disease.
Join our team and become a part of The SuperHero Dash
Simply click the "Join Team" link on our team roster.
Make a donation
Help us reach our goal! Select one of our super participants. Click their name to donate on their behalf. All the money donated from this page will support our team's overall goal.
Why Your Help Matters...
Also referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly takes away the body's ability to walk, speak, swallow and breathe. There is currently no cure for the disease with life expectancy averaging 2 to 5 years from the time of diagnosis.
Due to the rapid progression of ALS, the needs of someone living with the disease evolve rapidly over a short period of time. Often times insurance does not cover durable medical equipment, so The ALS Association utilizes a loan pool that allows people to access equipment at no charge. Caregivers often need a break, so The ALS Association pays for skilled home care workers to give those caregivers time. The ALS Association also provides augmentative communication devices that are critical when someone's ability to speak has been compromised.
All of these supports help individuals and families impacted by ALS live the fullest life possible, which is why we're asking you to support our fundraising efforts or join our team.